Lauren Boag - Scottish Huntington's Association

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time, meaning people can eventually lose the ability to walk, talk, eat, drink and care for themselves. Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing the expert, personalised support needed to cope with severe symptoms, the impact on families and a lack of awareness amongst health and social care providers and the wider public. Our specialist services reduce unnecessary hospital admissions, support carers and other family members; lower household poverty; and alleviate wellbeing risks to children and young people.

Lauren Boag, who is facing the onset of Huntington’s disease, is an outstanding volunteer fundraiser - there’s no stopping her when it comes to making sure Huntington’s families have the specialist support they need. In January 2023 she set out to raise £5000 in 12 months to bring her total so far to £38,500. Lauren is now heading for £45,000 by the end of 2024. The working mum-of-two raises awareness by speaking at events and in the media, inspiring people to get involved while creating opportunities for the charity to develop new relationships and expand its supporter base.